What Family Caregivers Need: Findings from Listening Sessions

By Eileen J. Tell, Mph; Pamela Nadash, Phd;Marc A. Cohen, Phd


This report is one of two components of the RAISE Family Caregivers Act. Family caregivers were provided multiple forums to express their needs and challenges, thoughts and concerns.  This report identifies findings from the forums and identify the specific services, supports or policy initiatives that can best address those needs.  More than 1,600 responses were received and analyzed.  Overall, caregivers’ highest priority concerns included the following domains:

·      Caregiving Education and Training
·      Respite Care
·      A Range of Financial Considerations, Including:

    • Having Workplace Flexibility
    • Direct Pay For Being A Caregiver
    • Changes In Tax Policy To Benefit Caregivers



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